Эрик Тополь - Будущее медицины: Ваше здоровье в ваших руках

69. G. Kolata, "Accord Aims to Create Trove of Genetic Data," New York Times, June 6, 2013, http://www.nytimes.com/2013/06/06/health/global-partners-agree-on-sharing-trove-of-genetic-data.html.

70. P. Waldron, "UC Santa Cruz Researcher Leads Cancer's Digital Revolution," San Jose Mercury News, January 2, 2014, http://www.mercurynews.com/breaking-news/ci _24836309/uc-santa-cruz-researcher-leads-cancers-digital-revolution.

71. "Global Genomics Harmony," Genome Web, March 7, 2014, http://www.genomeweb.com/print/1359101.

72. V. Swarup and D. H. Geschwind, "Alzheimer's Disease: From Big Data to Mechanism," Nature 500 (2013): 34–35.

73. H. R hinn et al., "Integrative Genomics Identifies APOE ε4 Effectors in Alzheimer's Disease," Nature 500, no. 7460 (2013): 45–50.

74. V. Marx, "Genomics in the Clouds," Nature Methods 10, no. 10 (2013): 941–945.

75. "Brought to Book: Academic Journals Face a Radical Shake-Up," The Economist, July 21, 2012, http://www.economist.com/node/21559317/print.

76. F. Berman and V. Cerf, "Who Will Pay for Public Access to Research Data?" Science 341 (2013): 616–617.

77. J. Esposito, "Open Access and Professional Societies," Scholarly Kitchen, August 1, 2013, http://scholarlykitchen.sspnet.org/2013/08/01/open-access-and-professional-societies/.

78. M. W. Carroll, "Creative Commons and the Openness of Open Access," New England Journal of Medicine 368, no. 9 (2013): 789–791.

79. M. Frank, "Open but Not Free – Publishing in the 21st Century," New England Journal of Medicine 368, no. 9 (2013): 787–789.

80. C. Haug, "The Downside of Open-Access Publishing," New England Journal of Medicine 368, no. 9 (2013): 791–793.

81. J. Priem, "Beyond the Paper," Nature 495 (2013): 437–440.

82. J. Wilbanks, "A Fool's Errand," Nature 485 (2013): 440–441.

83. "We Paid for the Research, So Let's See It," New York Times, February 26, 2013, http://www.nytimes.com/2013/02/26/opinion/we-paid-for-the-scientific-research-so-lets-see-it.html.

84. I. Sample, "Nobel Winner Declares Boycott of Top Science Journals," The Guardian, December 9, 2013, http://www.theguardian.com/science/2013/dec/09/nobel-winner-boycott-science-journals/print.

85. R. Schekman, "How Journals like Nature, Cell and Science Are Damaging Science," The Guardian, December 9, 2013, http://www.theguardian.com/commentisfree/2013/dec/09/how-journals-nature-science-cell-damage-science/print.

86. M. Eisen, "The Impact of Randy Schekman Abandoning Science and Nature and Cell," Michael Eisen.org, December 10, 2013, http://www.michaeleisen.org/blog/?p=1495.

87. J. Conn, "IT Experts Push Translator Systems to Convert Doc-Speak into ICD-10 Codes," Modern Healthcare, May 3, 2014, http://www.modernhealthcare.com/article/ 20140503/MAGAZINE/305039969/1246/.

88. S. Curry, "Push Button for Open Access," The Guardian, November 18, 2013, http://www.theguardian.com/science/2013/nov/18/open-access-button-push/print.

89. A. Swan, "How to Hasten Open Access," Nature 495 (2013): 442.

90. J. Novet, "Academia.edu Slammed with Takedown Notices from Journal Publisher Elsevier," Venture Beat, December 6, 2013, http://venturebeat.com/2013/12/06/academia-edu-slammed-with-takedown-notices-from-journal-publisher-elsevier/.

91. A. J. Wolpert, "For the Sake of Inquiry and Knowledge – The Inevitability of Open Access," New England Journal of Medicine 368, no. 9 (2013): 785–787.

92. D. Shotton, "Open Citations," Nature 502 (2013): 295–297.

93. "The Patent Bargain: An Open-Source Patent Database Highlights the Need for More Transparency Worldwide," Nature 504 (2013): 187–188.

94. E. Musk, "All Our Patent Are Belong to You," Tesla Motors Blog, June 12, 2014, http://www.teslamotors.com/blog/all-our-patent-are-belong-you.

95. W. Oremus, "Tesla Is Opening Its Patents to All. That's Not as Crazy as It Sounds," Slate, June 12, 2014, http://www.slate.com/blogs/future_tense/2014/06/12/ tesla_opens_patents_to_public_what_is_elon_musk_thinking.html.

96. C. L. Treasure, J. Avorn, and A. S. Kesselheim, "What Is the Public's Right to Access Medical Discoveries Based on Federally Funded Research?" Journal of the American Medical Association 311, no.9 (2014): 907–908.

97. D. G. McNeil, "Car Mechanic Dreams Up a Tool to Ease Births," New York Times, November 14, 2013, http://www.nytimes.com/2013/11/14/health/new-tool-to-ease-difficult-births-a-plastic-bag.html.

98. A. Tucker, "Jack Andraka, the Teen Prodigy of Pancreatic Cancer," Smithsonian Magazine, December 2012, http://www.smithsonianmag.com/science-nature/jack-andraka-the-teen-prodig y-of-pancreatic-cancer-135925809/?no-ist.

99. G. Cuda-Kroen, "Patients Find Each Other Online to Jump-Start Medical Research," NPR, May 28, 2012, http://www.npr.org/blogs/health/2012/05/28/153706146/patients-find-each-other-online-to-jump-start-medical-research?ps=sh_stcatimg.

100. G. Marcus, "Open-Sourcing a Treatment for Cancer," New Yorker, February 27, 2014, http://www.newyorker.com/online/blogs/elements/2014/02/open-sourcing-cancer.html?printable=true&currentPage=all.

101. J. N. Honeyman et al., "Detection of a Recurrent DNAJB1-PRK ACA Chimeric Transcript in Fibrolamellar Hepatocellular Carcinoma," Science 343, no. 6174 (2014): 1010–1014.

102. A. D. Marcus, "Frustrated ALS Patients Concoct Their Own Drug," Wall Street Journal, April 15, 2012, http://online.wsj.com/news/articles/SB1000 1424052702304818404577345953943484054?mg=reno64-wsj.

103. D. L. Scher, "Crowdsourced Clinical Studies: A New Paradigm in Health Care?" Digital Health Corner, March 30, 2012, http://davidleescher.com/2012/03/30/crowdsourced-clinical-studies-a-new-paradigm-in-health-care/.

104. A. Hamilton, "Could ePatient Networks Become the Superdoctors of the Future?" Fast Coexist, September 28, 2012, http://www.fastcoexist.com/1680617/could-epatient-net work s-become -the-superdoctors-of-the-future.

105. L. Scanlon, "Genentech and PatientsLikeMe Enter Patient-Centric Research Collaboration," PatientsLikeMe, April 7, 2014, http://news.patientslikeme.com/print/node/470.

106. N. Zeliadt, "Straight Talk with… Jamie Heywood," Nature Medicine 20, no. 5 (2014): 457.

107. A. Opar, "New Tools Automatically Match Patients with Clinical Trials," Nature Medicine 19, no. 7 (2013): 793.

108. T. Stynes, "Cholesterol Drug Trial Uses New Approach to Recruit Patients," Wall Street Journal, December 19, 2013, http://online.wsj.com/news/articles/SB100 01424052702304866904579268270123589210.

109. A. J. Parchman et al., "Trial Prospector: An Automated Clinical Trials Eligibility Matching Program," Journal of Clinical Oncology 31 (2013): abstr 6538.

110. J. Walker, "Data Mining to Recruit Sick People," Wall Street Journal, 2013, http://online.wsj.com/news/articles/SB100 01424052702303722104579240140554518458-printMode.

111. B. Goldacre, "RandomiseMe: Our Fun New Website That Lets Anyone Design and Run a Randomised Controlled Trial," Bad Science, December 16, 2013, http://www.badscience.net/2013/12/randomiseme-our-fun-new-website-that-lets-anyone-design-and-run-a-randomised-controlled-trial/.

112. H. M. Krumholz et al., "A Historic Moment for Open Science: The Yale University Open Data Access Project and Medtronic," Annals of Internal Medicine 158 (2013): 910–911.

113. M. Herper, "No More Secrets: Medtronic Shows How Open Science Might Work in the Real World," Forbes, June 19, 2013, http://www.forbes.com/sites/matthewherper/2013/06/19/no-more-secrets-medtronic-shows-how-open-science-might-work-in-the-real-world/.

114. J. S. Ross and H. M. Krumholz, "Ushering in a New Era of Open Science Through Data Sharing," Journal of the American Medical Association 309, no. 13 (2013): 1355–1356.

115. H. M. Krumholz, "Give the Data to the People," New York Times, February 3, 2014, http://www.nytimes.com/2014/02/03/opinion/give-the-data-to-the-people.html.

116. R. E. Kuntz, "The Changing Structure of Industry-Sponsored Clinical Research: Pioneering Data Sharing and Transparency," Annals of Internal Medicine 158, no. 12 (2013): 914–915.

117. R. Winslow and J. D. Rockoff, "J&J to Share Drug Research Data in Pact with Yale," Wall Street Journal, January 30, 2014, http://online.wsj.com/news/articles/SB1000 1424052702303743604579351261144315256.

118. "Discussion Framework for Clinical Trial Data Sharing Guiding Principles, Elements, and Ac– tivities," Institute of Medicine, Januar y 22, 2014, http://www.iom.edu/Reports/2014/Discussion-Framework-for-Clinical-Trial-Data-Sharing.aspx.

119. L. Marsa, "Health Care's Big Data Mandate," The Atlantic, December 16, 2013, http://www.theatlantic.com/sponsored/cvs-innovation-care/2013/12/health-cares-big-data-mandate/78/?sr_source=linkedin.

120. M. Langley and J. D. Rockoff, "Drug Companies Join NIH in Study of Alzheimer's, Diabetes, Rheumatoid Arthritis, Lupus," Wall Street Journal, February 3, 2014, http://online.wsj.com/news/articles/SB100 01424052702303519404579353442155924498-printMode.

121. J. Comstock, "UCLA Pilots Mobile Vision Testing App for Patients with Diabetes," MobiHealth-News, April 23, 2014, http://mobihealthnews.com/32369/ucla-pilots-mobile-vision-testing-app-for-patients-with-diabetes/.

122. V. Marx, "My Data Are Your Data," Nature Biotechnology 30, no. 6 (2012): 509–511.

123. P. Cameron et al., "Crowdfunding Genomics and Bioinformatics," Genome Biolog y 14 (2013):134.

124. K. Murphy, "Crowdfunding Tips for Turning Inspiration into Reality," New York Times, January 23, 2014, http://www.nytimes.com/2014/01/23/technology/ personaltech/crowdfunding-tips-for-turning-inspiration-into-reality.html.

125. B. L. Ranard et al., "Crowdsourcing – Harnessing the Masses to Advance Health and Medicine, a Systematic Review," Journal of General Internal Medicine 29, no. 1 (2013): 187–203.

126. S. Novella, "CureCrowd – Crowdsourcing Science," Science Based Medicine, May 7, 2014, http://www.sciencebasedmedicine.org/curecrowd-crowdsourcing-science/.

127. "Open-Source Medical Devices: When Code Can Kill or Cure," The Economist, May 31, 2012, http://www.economist.com/node/21556098.

Глава 12

1. L. Fox, «Snowden and His Accomplices,» Wall Street Journal, April 14, 2014, http://online.wsj.com/news/articles/SB100 01424052702303603904579495391321958008.

2. N. Bilton, "Entering the Era of Private and Semi-Anonymous Apps," New York Times, February 7, 2014, http://bits.blogs.nytimes.com/2014/02/07/entering-the-era-of-private-and-semi-anonymous-apps/?ref=technology.

3. S. Halpern, "Partial Disclosure," New York Review of Books, July 10, 2014, http://www.nybooks.com/articles/archives/2014/jul/10/glenn-greenwald-partial-disclosure/?pagination=false&printpage=true.

4. D. Frum, "We Need More Secrecy," The Atlantic, May 2014, http://www.theatlantic.com/magazine/print/2014/05/we-need-more-secrecy/359820/.

5. "A Robust Health Data Infrastructure," Agency for Health Care Research and Quality, April 2014, http://healthit.gov/sites/default/files/ptp13-700hhs_white.pdf.

6. H. Kahn, "Who Really Owns Your Personal Data?" Details, May 1, 2013, http://www.details.com/culture-trends/critical-eye/201305/sharing-biodata-on-apps-and-devices?printable=true.

7. L. Mearian, "How Big Data Will Save Your Life," Computer World, April 25, 2013, http://www.computer world.com/s/article/print/9238593/How_big _data _will _ save _your_life?ta xonomyName=Big+Data&taxonomyId=221.

8. E. B. Larson, "Building Trust in the Power of 'Big Data' Research to Serve the Public Good," Journal of the American Medical Association 309, no. 23 (2013): 2443–2444.

9. J. Ball and S. Ackerman, "NSA Loophole Allows Warrantless Search for US Citizens' Emails and Phone Calls," The Guardian, August 9, 2013, http://www.theguardian.com/world/2013/aug/09/nsa-loophole-warrantless-searches-email-calls/print.

10. J. Glanz, J. Larson, and A. W. Lehren, "Spy Agencies Tap Data Streaming from Phone Apps," New York Times, January 28, 2014, http://www.nytimes.com/2014/01/28/world/spy-agencies-scour-phone-apps-for-personal-data.html.

11. J. Angwin, Dragnet Nation: A Quest for Privacy, Security, and Freedom In a World of Relentless Surveillance (New York, NY: Henry Holt and Co., 2014).

12. J. Angwin, "Has Privacy Become a Luxury Good?" New York Times, March 4, 2014, http://www.nytimes.com/2014/03/04/opinion/has-privacy-become-a-luxury-good.html.

13. M. Wood, "Sweeping Away a Search History," New York Times, April 3, 2014, http://www.nytimes.com/2014/04/03/technology/personaltech/sweeping-away-a-search-history.html.

14. T. Gara, "What Google Knows About You," Wall Street Journal, April 27, 2014, http://blogs.wsj.com/indiarealtime/2014/04/27/googles-all-seeing-eye-does-it-see-into-me-clearly-or-darkly/tab/print/.

15. M. Sopfner, "Why We Fear Google," Frankfurter Allgemeine Feuilleton, April 17, 2014, http://www.faz.net/-gsf-7oid8.

16. D. Talbot, "Ultraprivate Smartphones: New Models Built with Security and Privacy in Mind Reflect the Zeitgeist of the Snowden Era," MIT Technolog y Review, April 23, 2014, http://www.technologyreview.com/featuredstory/526496/ultraprivate-smartphones/.

17. G. Schmidt, "Cellphone Cases to Prepare You for Anything, Even a Flat Tire," New York Times, April 24, 2014, http://www.nytimes.com/2014/04/24/technolog y/personaltech/cellphone-cases-to-prepare-you-for-anything-even-a-flat-tire.html.

18. K. Wagstaff, "Anonymous, Inc.: The Corporate Set Embraces Digital Ephemerality," Wall Street Journal, May 29, 2014, http://online.wsj.com/articles/anonymous-inc-the-corporate-set-embraces-digital-ephemerality-1401378250.